Update on Katie
Friday, November 30th, 2007First off, I want to thank each and every one of you who has sent an encouraging note, story, or thought on our behalf. We have felt a tremendous sense of peace throughout all of this and we accredit that to all of the people who have lifted us up and our Father’s love for us.
Here are the answers from Katie’s doctor visits today:
First off, she has no signs of epilepsy on her MRI or EEG. It seemed to a pretty clear no for the epilepsy option.
However, her MRI revealed that she has a good sized cyst on her brain. It appears to be something she was born with and something that will not grow or change as she gets older. Frankly I’m far too tired to get medical here, but this is the basic gist. She will probably never be an Olympic athlete, but other than that she will be fine. The area of her brain where the cyst is located controls balance and coordination. So she will probably always be a little bit clumsy. But she should not have any serious issues with this.
So why did this become an issue now? We don’t really know. She has always been the clumsier one of our girls- she dislocated her elbow at 15 months and fell and split her chin open at 2 and has always been the injury-prone child. The reason she might be falling more now is that she is just struggling more to adapt to the slippery and uneven flooring here. And her “fits” seem to be stress-related and as we have made a more concerted effort to put her in more English language environments (less time alone with ayi) and give her more one-on-one time, they seem to have decreased in frequency over the last week. There is no medical reason for them though, and we are thankful for that.
We really feel like this is a best-case scenario and we are so grateful.
There is a kind of cool story in all of this. Today, our pediatric neurologist was leaving China, and will not return until January. He stayed at the hospital just long enough to evaluate her MRI films. He was able to contact a neurologist who actually lives and works in the US but was born in Beijing and is in Beijing right now- this neurologist was visiting a patient at the same hospital today and he came down and did an evaluation of Katie and looked at her films and explained to me everything in perfect English. The first doctor is not a native English speaker and I was not 100% clear on everything. It was such a reassuring thing to have someone explain everything in a way that left me confident and reassured. I feel it is so much more than coincidence that this US-based neurologist just “happened” to be at the hospital today and was able to help us.
I’m writing this from a coffee shop near the hospital. We had hired a driver to take us back to Tianjin tonight, but he was in a traffic accident and didn’t have his driver’s license so the car is being impounded… but a friend who owns a van will actually be in the area in a few hours, so we will be able to go home later tonight hopefully! Life in China is never, ever boring!
Thank you again for all of the thoughts on our behalf- we appreciate it more than words can say!










































